Hope in ALS - Things I've Learned with Richard Bedlack, MD, PhD

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CCALS Cultivating Compassion Education Series: Recorded on June 9, 2024. In this new talk, Dr. Bedlack explores the concept of hope: when he first learned about it, how it is defined, why it matters, and where it comes from. He highlights what he believes are hope-promoting and hope-suppressing clinician behaviors and where there are opportunities for more research in this important field. Dr. Bedlack is currently the Stewart, Hughes, and Wendt Distinguished Professor of ALS, and leader of the Duke ALS Program, ALS Clinical Research Learning Institute, ALSUntangled, and ALS Reversals Research Program. About the Speaker: As previously noted, Richard Bedlack, MD PhD, is the Stewart, Hughes, and Wendt Distinguished Professor of ALS and leader of the ALS Program at Duke University. He received his MD and PhD in Neuroscience from the University of Connecticut, then went to Duke for his Medicine Internship, Neurology Residency, and Neuromuscular Fellowship. Since 2001, he has been working in partnership with patients to create new options for living a better and longer life with ALS, to empower people living with ALS to be more effective research partners via the ALS Clinical Research Learning Institute, to help patients and families make more informed decisions about alternative and off label treatments via the ALSUntangled program, and to better understand ALS Reversals and try to make them happen more often. He has published over 160 papers and has received numerous awards for his patient care, research, teaching, and advocacy. He lives in NC with his wife Shelly, a closet full of eye-catching blazers, and 2 mischievous cats. Links: ALS Clinic Duke University Northeast Amyotrophic Lateral Consortium ALS Untangled Duke University School of Medicine

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